Postural Orthostatic Tachycardia Syndrome, also known as POTS syndrome, is defined by orthostatic symptoms (symptoms on standing such as lightheadedness) and an accompanying dramatic increase in heart rate. The symptoms typically occur within 5 minutes of straight standing.
To find experts in POTS around the United States check out XpertDox.
POTS and Brain Fog – What Does It Mean?
Symptoms described by POTS syndrome patients are wide ranging and include fatigue, weakness, light-headedness, sleep disturbance and others. Also prominent amongst these symptoms is impairment of cognitive function, aka brain fog. Cognitive function is a term that basically encompasses intellectual processing. This complaint is a common complaint amongst POTS syndrome patients and is often called “brain fog”.
The term brain fog is, of course, imprecise, so one study set out to characterize the term brain fog further. They looked at 138 POTS syndrome patients who were aged between 14-29 years, 88% were female. Specifically designed questionnaires were used to gather information.
What Triggers Brain Fog?
Almost all of the participants reported experiencing brain fog. The most common descriptors of brain fog were difficulty focusing, thinking, and communicating. They also looked at what the triggers for brain fog were. They were fatigue (91%), lack of sleep (90%), prolonged standing (87%), dehydration (86%) and feeling faint (85%). It was also noted that the symptoms persisted after laying back down.
Treatments For Brain Fog
Over 75% of the patients had tried non-drug treatments of POTS with varying success. Lying down was found to be helpful in around 80%. Around 60% of patients found that avoiding heat, lying down, high fluid intake, and high salt diets for POTS were helpful. Around half of the participants noted that brain fog was made worse by exercise although regular aerobic exercise was listed as something that improved symptoms. 60% felt showering made it worse, and about 1/3rd found caffeinated beverages made it worse.
It was found that several different medical interventions had been tried for treating the brain fog ranging from IV saline infusions, salt tablets, B12 injections, and medicines used to stimulate blood pressure increase. IV saline was found to improve brain fog in around 80%, stimulant medicines in around 70% and salt tabs or b12 injections in around 50%. About 30% reported that some of the commonly used antidepressant medications made the brain fog worse.
Conclusions
Brain fog was found to be common in POTS syndrome and most commonly described as difficulty focusing, thinking, and communicating. Triggers included fatigue, lack of sleep, prolonged standing, dehydration and feeling faint. The most commonly helpful non-drug factors were avoiding heat, lying down, high fluid intake, and high salt diets. Of the drug treatments tried, IV saline was most effective. The study is more of an exploratory study and the design limitations of the study mean no strong conclusions can be drawn. The study is important though, because it gives us insights and ideas into POTS syndrome and its associated symptoms. Further studies are required to confirm these findings and find the most effective treatment strategies.
I was diagnosed with Addison’s disease in March of this year during an Addison’s crises. Since this time ive had a a couple trips to the Er. I have had Chronic fatigue Syndrome, mostly due to a reacurrence of Upper Respiratory Infections. Although taking the Hydrocortisone therapy for the Addison’s disease has helped with the fatigue, I still have a milder form of chronic fatigue and weakness. Something that has bothered me about my dx of Addison’s Disease is that I have never had the hyperpigmentation, weight loss, or anorexia associated with the disease. After reading about POTS, I find that I have every symptom listed, and have for some time. This has made me feel that there are answers out there for people who are suffering with rare diseases. I have also been diagnosed with Hashimoto Thyroiditis and Fibromyalgia. I’m 43 and have always been athletic and energetic, this has been a very trying year for me. I have hope though that I can get the right answers I need and keep fighting to get back some of the ” light”, that these diseases have taken from me. I thank you so much for this website, and any inquiries will be welcome.
I’m a 17 year old male and have had POTS for several years now, and i’ve used both adderall and ritalin for the brain fog as i am in school and forced to constantly keep up with everyone else. Both really work, i would recommend talking to your doctors about it. They also help with daily fatigue and how long i’m able to focus when i’m feeling especially unwell.
I take Vyvanse, an ADD drug, daily to combat my brain fog. While it doesn’t completely eliminate it, it helps significantly. I can’t function on a higher level at work without it. I agree with the previous poster, look into adderall and other ADD meds to combat the brain fog.
Hi Freddie-
I’ve had this stuff all my life, though I didn’t know what it was early on. The brain fog is the worst. How do you respond to these medications? Do you feel a sense of well-being or just much more clear thinking? If I could get rid of this, I’d be grateful. I’ve been searching a long time.
Thanks,
CW
To those students with POTS who take stimulants such as adderall or vyvanse – does this aggravate tachycardia? Anyone have experience with Straterra, a non stimulant ADD med? Thanks
I tried Ritalin, but the come-down afterward was too intense. Brain fog and fatigue like a ton of bricks. Never again.
I find POTS-specific therapies such as increased water and salt intake, compression etc more effective and address not only the brain fog but all POTS symptoms.
I tried Adderal one time and it sent my system into overdrive. I could barely drive. Heart palpatations were worse. It was a rough day.